Monday, May 27, 2013

FOXNews.com: 'SHE MAY NOT MAKE IT': Parents of Dying Girl, 10, Fight Organ Donor Rule

FOXNews.com
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'SHE MAY NOT MAKE IT': Parents of Dying Girl, 10, Fight Organ Donor Rule
May 27th 2013, 18:18

  • SarahMurnaghan.jpg

The parents of a 10-year-old girl dying of cystic fibrosis are fighting organ-donation rules that require adult lungs be offered first to adults, who are in less serious need than their daughter.

Sarah Murnaghan, who has only weeks to live, is eligible for adult donor lungs, but because of her age, she can only receive them after all adult candidates – regardless of the seriousness of their condition – have the chance to receive them.

"We're starting to face the fact that, you know, she may not make it. And that we're sitting here with weeks," her mother, Janet Murnaghan, of Philadelphia, told Fox affiliate WTXF.

"I want to be famous and be on stage and sing and dance, and play my xylophone," the young girl told the station.

Pediatric lungs are rare, and the Murnaghan family thought their daughter would have a shot at a transplant when she made a list of adults. But they soon found a national organ rule standing in their way, according to the station.

The Murnaghans said they learned Sarah, who is being treated at Children's Hospital of Philadelphia, has to be at least 12 to compete with adults on the list, even if there cases aren't as dire.

"The only thing standing between my daughter living and my daughter dying is the fact that she's 10 and not 12," Janet Murnaghan said. "That's unreal to me."

"Since we really have gotten to understand the rules of all of this in the last week or two, it's really driven us to speak out," said Sarah's father, Fran Murnaghan.

Family and friends are fighting for her, circulating a petition on Change.org that as of Sunday had nearly 12,000 signatures.

Click here to view the Change.org petition

Click for more from MyFoxPhilly.com

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